Impact of Surgery on the Quality of Life of Caregivers of Children with Congenital Glaucoma

Although primary congenital glaucoma (PCG) is a rare disease, it occurs worldwide. Surgery is the mainstay of treatment of PCG, with surgical success rates having improved dramatically over the past few decades to 70% to 80%.1 However, there are few reports of patient-reported outcomes in PCG.2,3 A diagnosis of a sight-threatening condition such as PCG in a newborn or very young child can have significant psychosocial implications for families, who may experience a range of emotions such as guilt, fear, sadness, anxiety, and grief.